Running Rare

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Welcome to Managing RareManaging Rare is a sub-section of my main Substack Running Rare, where I will focus more on what I am learning as a project manager. It is a role I thoroughly enjoy and I’m looking forward to growing and developing my skills this year. I have a lot to learn, so I decided to start…
Jan 24
Trying to turn painful memories into a more hopeful futureComing Soon: The Running Rare Health Fund in Partnership with Hands Across Canberra
Jan 16
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The 175th Run for Rare DiseasesCelebrating the Running Rare Journey
Feb 8
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The Summer BreakA few months ago I felt deeply exhausted and overwhelmed. I had been running on fumes for a while. To exacerbate the problem, the end of the year was filling up with interstate travel and commitments. With everything ahead of me, I didn’t know how I was going to manage to get…
Jan 7
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The Summer Break
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Trying to turn painful memories into a more hopeful future
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I need help
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The Dentist
9
3
Please prove me wrong
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5 years on... a lot has changed, a lot has remained the same
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See all popular
NewCommunity
Training to be knocked down, so you know how to get back up againAs the evening cooled after a hot Australian summer’s day I ventured out for a walk. My mind quiet for the first time in a long time, I reflected on my…
Dec 28, 2022
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Reflections on 2022Lessons, challenges, achievements, gratitude and everything in-between
Dec 22, 2022
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5 years on... a lot has changed, a lot has remained the sameReflecting on my journey
Dec 14, 2022
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A Response to Running for Resilience’s Open Source Thinking #2Matt Breen of Running For Resilience has started a powerful series on his Substack, titled Open Source Thinking. As explained by Matt, the purpose of…
Nov 16, 2022
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Filling my cupAnd hopefully lifting another
Sep 21, 2022
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Please prove me wrongI want to challenge my perspective and broaden my understanding
Sep 4, 2022
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The DentistThis week I sat patiently in the waiting area of my dentist’s clinic for my name to be called. “Tim?” a soft-voice from around the corner broke the…
Aug 28, 2022
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I need helpHow do we normalise reaching out for support?
Aug 17, 2022
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See all

Most popular

The Summer Break
10
20
Trying to turn painful memories into a more hopeful future
9
4
I need help
9
4
The Dentist
9
3
Please prove me wrong
8
7
5 years on... a lot has changed, a lot has remained the same
8
5
See all popular

Running Rare

Living life with a rare and chronic disease.
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Running Rare

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Running Rare

Living life with a rare and chronic disease.

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