Managing Rare is a sub-section of my main Substack Running Rare, where I will focus more on what I am learning as a project manager. It is a role I thoroughly enjoy and I’m looking forward to growing and developing my skills this year. I have a lot to learn, so I decided to start this newsletter to help me with my own personal development. I also hope that this newsletter might be helpful to you too!
I have a disease similar to Stills—fibromyalgia. It’s comparable to rheumatoid arthritis in degree of destruction on body, mind, family, career. Since I got it as a 20-year-old man, and it usually affects elderly women, my presentation was rare. I’m a family physician. I’ve taken care of far more patients with fibro than Stills, but I’ve never had a male fibro patient who got their disease as young as I did.
I like to run, and I like to write. It’s good to know you are writing, bringing hope, finding purpose through your hardship. I’m trying to do the same. Maybe our purposes will align for something significant someday.
PS I have a post on running, titled “After the Cone.” (I’m not on Substack yet, but probably will be later in 2024.) My epic dystopian fantasy novels, not yet published, explore chronic pain, and do it in the Stone Age, where running is really important.
Sounds like fun. I’d like to talk sometime. I wonder what time of day would work for both of us. I’m just on EST, which is GMT + 5 hours.
I used to run more. My goal is to participate in at least 1-2 little road races per year. I’m planning on a 5K in mid May. My goal was 24 minutes, 23 min in my dreams. We’ll see. Are you running any races soon?
Welcome to Managing Rare
Dear Timothy—
I have a disease similar to Stills—fibromyalgia. It’s comparable to rheumatoid arthritis in degree of destruction on body, mind, family, career. Since I got it as a 20-year-old man, and it usually affects elderly women, my presentation was rare. I’m a family physician. I’ve taken care of far more patients with fibro than Stills, but I’ve never had a male fibro patient who got their disease as young as I did.
I like to run, and I like to write. It’s good to know you are writing, bringing hope, finding purpose through your hardship. I’m trying to do the same. Maybe our purposes will align for something significant someday.
TroyAThompsonMD@gmail.com
TroyAndrewThompson.com
PS I have a post on running, titled “After the Cone.” (I’m not on Substack yet, but probably will be later in 2024.) My epic dystopian fantasy novels, not yet published, explore chronic pain, and do it in the Stone Age, where running is really important.
Troy
Hi, Tim—
Sounds like fun. I’d like to talk sometime. I wonder what time of day would work for both of us. I’m just on EST, which is GMT + 5 hours.
I used to run more. My goal is to participate in at least 1-2 little road races per year. I’m planning on a 5K in mid May. My goal was 24 minutes, 23 min in my dreams. We’ll see. Are you running any races soon?
Troy