Tim. Your there because you have a unique perspective. As a person who is experiencing a rare disease your experience is what they want to hear. Be true to your experiences and what you know. Not as an expert on anything else. What do you and people you know need. You’ve got this mate.
I'm no expert on advocacy or being an active political citizen but I've seen how face to face personal story telling is a extremely effective way of connecting and communicating on such an important topic as this - There can surely be nobody more important to listen to than those with lived experience. Looking forward to hearing how it went and what is to come in chapter three.
You've got this Timmy. If it's affecting anyone then it matters. There's a reason you're in this position, you'll be great. 🙌
Tim. Your there because you have a unique perspective. As a person who is experiencing a rare disease your experience is what they want to hear. Be true to your experiences and what you know. Not as an expert on anything else. What do you and people you know need. You’ve got this mate.
And yeah. Go for a run after.
All the best mate and say g'day to Nathan "Cheesey" Charles if he's there
https://www.linkedin.com/feed/update/urn:li:activity:6965317378293256192?updateEntityUrn=urn%3Ali%3Afs_feedUpdate%3A%28V2%2Curn%3Ali%3Aactivity%3A6965317378293256192%29
I'm no expert on advocacy or being an active political citizen but I've seen how face to face personal story telling is a extremely effective way of connecting and communicating on such an important topic as this - There can surely be nobody more important to listen to than those with lived experience. Looking forward to hearing how it went and what is to come in chapter three.
This is an incredible opportunity and you've totally got this. I hope it goes well!
Back yourself, Timmy! Don’t be anything other than yourself. The right people will listen.