Dear Readers, Firstly, I would like to thank you for subscribing to the Running Rare newsletter! This week marks the start of Running Rare Chapter Three and 200 days until Rare Disease Day 2023. Unfortunately, due to COVID, I’m off to a less-than-desirable start and I haven’t started running yet. However, I am hopeful for a speedy recovery and that I might be able to start putting some kilometres and rare diseases on the board in the coming weeks. You can keep up-to-date on my progress, and check out the previous chapters,
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