As the evening cooled after a hot Australian summer’s day I ventured out for a walk. My mind quiet for the first time in a long time, I reflected on my hopes and dreams for 2023. I thought about my plans to improve my fitness over the summer, and whether I would be able to play another season of ice hockey in the coming year. As I reflected on my childhood sport of choice, a sport so foreign and unfamiliar to many Australian’s, I thought about how natural it felt to be back on the ice again. How liberating it was for my illness to take a backseat for one hour each week. Sure, it demanded its interest in the days to come. But for that hour, that precious moment, I was free.
Tim, have you seen Penguin Bloom? it's also a book, based on a true story. Same becomes paraplegic after an accident in Thailand. I imagine it similar to you adjusting to life and learning what your limits are with Still's disease.
Thanks so much for sharing and providing insight. To quote Grace Tame from an interview that I read about this morning after finishing her book - "When we share, we heal, reconnect and grow as individuals and as a united, strengthened collective. History, lived experience, the whole truth, unsanitised and unedited, is our greatest learning resource. It is what informs social and structural change".
Great stuff mate. I think those genetic screenings are done at my Dad’s lab!
Tim, have you seen Penguin Bloom? it's also a book, based on a true story. Same becomes paraplegic after an accident in Thailand. I imagine it similar to you adjusting to life and learning what your limits are with Still's disease.
Thanks so much for sharing and providing insight. To quote Grace Tame from an interview that I read about this morning after finishing her book - "When we share, we heal, reconnect and grow as individuals and as a united, strengthened collective. History, lived experience, the whole truth, unsanitised and unedited, is our greatest learning resource. It is what informs social and structural change".
Bit of momentum brewing