I know what you mean about the grey and I think brain struggles to consider that life isn't binary because it is wired to simplify complex information and make quick decisions, which often leads to a tendency to think in black and white. But creating time to slow down and gather all the data needed to consider the grey is challenging, but not impossible.
Great stuff and will have more of a think about how I could help, but what first comes to mind is for you to write more and to copy-paste it to Twitter or a LinkedIn newsletter to get this important message out there in front of more eyeballs!
I think one of the hardest battles and my experience is mostly in dealing with chronic pain, but many diseases are similar the symptoms are often felt and not seen. It's awesome that you writing about it so people can understand it and others better. It's the whole "but you don't look sick". If there is no physical sign of illness/injury then everything is fine and in my clinical experience that is what makes living with it hard.
I know what you mean about the grey and I think brain struggles to consider that life isn't binary because it is wired to simplify complex information and make quick decisions, which often leads to a tendency to think in black and white. But creating time to slow down and gather all the data needed to consider the grey is challenging, but not impossible.
Great stuff and will have more of a think about how I could help, but what first comes to mind is for you to write more and to copy-paste it to Twitter or a LinkedIn newsletter to get this important message out there in front of more eyeballs!
I think one of the hardest battles and my experience is mostly in dealing with chronic pain, but many diseases are similar the symptoms are often felt and not seen. It's awesome that you writing about it so people can understand it and others better. It's the whole "but you don't look sick". If there is no physical sign of illness/injury then everything is fine and in my clinical experience that is what makes living with it hard.